Tuesday, March 12, 2013

WOW, it's been a while...

Andrew & Matthew's First Communion - May 2012
Has it really been that long since our last blog post?!?  SOOOO much has happened in the last year that I really don't know where to even begin! So I guess we will try to get caught up in the next few weeks as I plan on starting to blog again. No, really, I am. I know I've said it many times but even in our busy lives, I really need to keep everyone updated on what's going on in the Faville household. 
Also, I was just recently inspired to start blogging again.  You see, Sean and I have joined Crossfit.  Oh, you don't know what that is?  Check out the link  http://www.crossfit.com/ or our local Crossfit  box www.northcountrycrossfit.com. You will see that this is not your average "gym". I'd love to tell you all more about it but I am going to start a new blog page dedicated to my Crossfit experience and my Paleo Challenge. Yes, I've agreed to eat like a cavewoman!  You'll learn more about that too.  This way, I can keep this page dedicated to the whole family goings-on.
Stay tuned for more info on what we've been up to... I may even get around to updating that photo that paints the top of the screen!  You'll be amazed at how much the boys have changed and how much they've grown into little men.  Andrew is getting ready to turn 10... yup, 10!  Matthew won't be 9 until August, which seems so far away, but yet so close.  Sean is, well, still over 40 (teehee) and me... we won't discuss my age.

Here's a little sneak peak at how much we've aged....

Tuesday, August 30, 2011

Another month has passed...

So maybe we'll make this a monthly blog? 
Summer is coming to an end pretty soon. We've had a busy summer and got some good use from the pool on hot summer days and nights but it seems to be ending. The past month the boys have been busy with the fun runs on Wednesday nights. Matthew almost had an undefeated series. He won 7 out of 8 races this summer! (see link for Press writeups) Now soccer season has officially started & his first game is on this coming Saturday. So far it looks like he's learned a few tricks from Soccer camp.
Andrew is still busy with Medicine Horse Farm where he attends dayhab and receives Equine Assisted Therapy. He's back to his favorite horse Sheba now. He's even gotten to ride Thor the newest horse on the farm. This guy is gigantic! But he still loves his firsts, Lilly & Grace. He goes two days a week for a total of 4 hours a week. He loves spending time on the farm riding, brushing, walking the trails, helping with tack and he's even learning to use the reigns so he can soon ride unassisted. He's very excited for this but he still has a lot of work to do on his proprioception. He's improving but not enough to steer independently. He also has legs like rubber bands and requires about 20 minutes of riding without stirrups to stretch out enough to ride comfortably.
Sean and I are still running when we can. We all participated at the Run For Jon this past Saturday. It takes place at an apple orchard. (see link for details). Andrew did the kids fun run & did an excellent job. He didn't even fall once and was able to successfully run through the thick grassy orchard & finished with his hands in the air like he just ran a marathon with the biggest smile ever! Sean had a great finish at 48th/214 with a time of 16:59. I finished at 168th at 22:41 and most impressively Matthew finished the race in 166th place with a time of 22:38... He did so great! He was the youngest runner again this year.

We had a pretty crazy Sunday as well. Hurricane/Tropical Storm Irene passed through wreaking havok! She tested our nerves, that's for sure. The storm was not suppose to be this devastating for our are so many were unprepared. Us, on the other hand, were. We purchased a battery back up sump pump, lots of batteries, dug out the flashlights, stocked up on water and candles. We even froze containers of water in the freezer to use as ice blocks in case we lost power for any period of time. Thankfully we were spared the loss of electricity until about 11pm until 3or 4am. We didn't have to use our pump. Although we did get about 6 inches of rain in a 24 hour period, we were spared the stress of a flooded basement this time. I guess the dry summer has helped. We did, however lose a fairly large tree that blasted through our fence just grazing the pool. With the help of some neighbors they were able to guide the falling tree to a safe landing area between the pool and kids' playset.  (video Here & Here ). There's been a lot of devastation in the area. Many people are still without power 4 days later. Roads are washed out. The Adirondack Mountains are literally "Closed". Yeah, really. They are not allowing hikers to enter due to massive flooding and damage by wind. There's been major landslides on the peaks... some that are so large they can be seen from arial footage and have permanently changed the face of the mountains.  (read more here)  There is storm coverage everywhere you look. Vermont, just across the Lake from us is virtually underwater as well as the local town I grew up in. It's sad to see historic structures just disintegrate down the rivers. Things you can never get back. Hearing of friends homes and property that's been completely destroyed is so maddening.
So now the cleanup continues as we chop up that tree and repair the fence. Nothing to complain about considering the stories we hear and see. We'll go on with our summer and hope for some more warm days before Fall and winter set in.
We're also in the midst of helping organize a Monster Dash Walk/Run and Goblin Gallop Kids Fun Run to benefit Medicine Horse Farm's Equine program. Andrew benefits from this program and we were asked if we'd like to help organize it since we are "semi" experienced runners. Having participated in numerous races they though we could provide some insight on the planning of the event as well as my expertise in design and promotion of the event. I've been on quite a few planning committees so that helps too. So anyone who would like to participate in any way, feel free to contact me. See the facebook event here for more information. It's not your average race. There will be Monsters (hence, the name) and they will be out to take your lives! The monsters will be hidden throughout the course trying to steal flags that you will be given. If you finish without any flags then you will be out of lives. Without any lives your time will be recorded but you will not be eligible for prizes. Although there will be numerous other prizes to be awarded including a costume contest!  It takes place Sunday, October 23, 2011 (tentatively) at Banker Orchard, Plattsburgh, NY.   Anyone can participate, volunteer or sponsor. The more the merrier!

Wednesday, July 27, 2011

Where has the time gone?

Wow, again it’s been a long while since we’ve updated our blog. So much has happened since our last post in November.
Since we last posted, you can imagine the chaos our lives have taken on. The boys are doing great and still fight and try to “one up” each other on everything from how tall they are to who has the better photo album to look at.
We had a wonderful Christmas and New Year surrounded by family and friends. Sean and I competed in the Plattsburgh Half Marathon in April and we both surpassed our goals. It will be a traditional event for us as long as they keep it going. We never thought we’d say it but it’s really a lot of fun and makes you feel great to accomplish something like that.
Our winter was definitely a snow-filled one! We enjoyed a lot of sledding this winter and Matthew even got to try his hand at some snowboarding. He got an inexpensive one for Christmas but it was enough to find out that it was something he really liked. So maybe next year he can have a better one and maybe take some lessons.

Spring was filled with marathon training in snow, sleet, rain and the horrible wind. After the marathon we continued our fund-raising efforts for the March of Dimes March for Babies. We did a huge raffle and our regular fund-raising and surpassed our team goal this year.  It’s always a great event and being on the committee has it’s challenges but it’s well worth it to see such a successful event completed.

The end of the school year was an exciting one for the boys. They both did well on their report cards and progress notes show Andrew and Matthew have improved a lot this year. We had a rough start with Matthew but as soon as he got into the routine of 2nd grade, he adjusted quite well. Andrew made many gains this year at school but still falls well below average. We’re all working very hard to keep him in the regular classroom. Physically, Andrew has progressed quite nicely this year. Since having his heel cord lengthening surgery last September, his walking and strength have improved tremendously! Although we are seeing some difficulties with his other leg (toeing in and toe walking) his abilities have greatly improved. He’s been doing a great job at Aquatic therapy & it’s helped him to improve on his reciprocal motions and coordinating his right arm-left leg alternations. He still has a long way to go in increasing his strength.
Andrew recently has gone back to Medicine Horse where he receives Hippotherapy and Equine Assisted Therapy. We’re so very excited about this! He’s had almost a month of sessions and we’re already seeing some major differences. Those horses work him hard but he’s able to maintain stamina throughout his sessions and has been able to increase his riding time at each session. We’ll be adding 2x a week sessions soon. He’s also got a tutor for the summer that he sees two days a week and he really seems to enjoy it. Unfortunately Andrew’s CSE (committee on Special Education) didn’t agree to summer services due to Andrew’s lack of regression. Even though that lack of regression is because we increased therapy over school breaks, etc. But we’ve overcome our disappointment for now and we decided to continue to help him throughout the summer as much as we can with our own means. So this makes for a very busy summer. Thankfully again, we have Arihanna to nanny the boys for the summer and do homework time daily as well as making sure they get to their camps, therapy, special events, etc. We don’t know what we’d do without her!

Andrew also joined a baseball team this summer and did really well. He was able to run the bases as well as some of the other players did, brought in some runs & even had a few hits himself. He’s taken a liking to running and competes in the fun runs at our park on a weekly basis. He’s really done quite well and as compared to last year, he’s doubled his race speed and distance! Last year he could barely complete the 1/4 mile and this year he’s able to complete the 1/2 mile (although exhausting) he finishes within the middle of the pack. That and swimming were the two greatest sports recommended by his Neurosurgeon. So we thought we’d give it a try and he’s liking both of them.

Matthew has had an extremely busy spring and summer! He too joined a baseball team but was quite disappointed when we found out that he would not be able to play baseball but would have to play t-ball since he was 2 days from the age cutoff! He played really well and even though he hated the concept of “t-ball” he understood when we explained that this would be an advantage when he’s older. So to make up for it we allowed him the chance to go to baseball camp. He absolutely loved this. He did learn a lot and was proud to come home each day and tell us what he learned. Matthew has also continued to love his running. All spring he competed in fun runs and continues this summer at a different park. He’s won ever race except one. Unfortunately the one he lost was one during the week of baseball camp which really tired him out. He was sad and disappointed but I think it was something that needed to happen. Matthew was getting too confident with winning and he needed to see that even the best athletes have a bad race or game sometimes.  He also attended soccer camp this summer to help him improve his soccer for this coming fall. Another sport he thoroughly enjoys.

As a family we’ve done lots of camping and have two more trips planned already. We purchased a pop-up camper this spring and we’re getting good use out of it. The boys really enjoy camping as much as we do. It’s nice to have that uninterrupted family time together without all the technological distractions in life.  We took a hiking trip this year too. Our first ever as a family. We hiked up Rattlesnake which is a smaller mountain but still has some great views that helped the boys understand why we went through all the work of climbing the mountain. They got to experience the joy of their first climb when they reached the summit. This may be a new family day activity. We were all so impressed by Andrew’s ability to climb. He had a difficult time navigating the tree stumps and stones that were buried on the trails and ended up needing to be carried for a good portion since he was at one point crying out of frustration and skinned knees. But when we came face to face with huge boulders and trees, Andrew was able to get down on his hands and knees and climb up that way with no problem. His upper body strength helps him out a lot in this area. Soon enough he was smiling ear to ear when he accomplished this goal and marveled at the wonder of the mountains from the top. They loved to look down on the lake and see how tiny the boats looked.
We made a trip to Lake George this year and brought the boys camping and to the Six Flags Great Escape park to reward them for all their hard work this year at school and in their sports. They got to ride their first real upside-down roller coaster and they loved it! 
Sean and I have even had the chance to take some time to ourselves here and there. We went to a few concerts and out to some dinners alone and with friends. We’ve had the chance to reconnect with some old friends we haven’t seen in years. We’re looking forward to our 10 year anniversary this September and planning a trip to Las Vegas to celebrate. We plan to renew our vows... maybe even by Elvis!
This summer’s weather has been so cooperative with all our outdoor adventures and we only wish it could never end.  
Hopefully we can get some pictures added of all our great experiences so you can share a smile with us!

Monday, November 8, 2010

We're at it again...

We're helping Hannah's Hope Fund by telling everyone we know to vote for them for the chance to win a Pepsi Refresh $250,000 grant. Tell everyone you know and it will help them to get one step closer to finding treatments and possibly a cure for GAN. To learn more about this organization you can visit www.hannahshopefund.org. To vote for Hannah's Hope Fund in the Pepsi Refresh Project, visit http://www.refresheverything.com/hannahshope or click on the widget on our page.
Hannah is an adorable little girl living with Giant Axonal Neuropathy (GAN), a rare genetic disorder that slowly takes away one's ability to walk, use one's hands, speak, swallow and is terminal. We know too well the difficulties a neurological impairment brings to the quality of life for a person. Hannah's story is alike but also much different than ours since Hannah's disorder is life threatening and in order to help her, we need to support the Hannah's Hope Fund.
You can also help by going to http://www.refresheverything.com/hannahshope and looking to the right of the page to retrieve the code for a widget that you can add to your outgoing email signature, blog or website. The more people you reach, the better the chance we have of saving Hannah!

Tuesday, November 2, 2010

It's Autumn!!

Our fall days have been filled with seasonal fun! The boys are enjoying all of the falling leaves and festivities of  apple orchards, picking out pumpkins, decorating for Halloween and trick or treating.  Matthew finished out his soccer season with a bang. He scored lots of goals this season and can't wait to play again next year. They offer indoor soccer here but who can get their kids there by 4pm all the way across town 2 nights a week?  Not this mom! Andrew just started boy scouts tonight and can't wait to go and see all of the fun things boy scouts do. They are both doing well in school, but we'll know for sure mid-November at Parent-Teacher conferences.
Andrew continues to progress after his surgery very nicely. Since he only had the left leg done at this time, we're working just as hard on his right leg, which continues to show signs of toe walking. We're really hoping that with the increase in PT that it will correct itself like the doctor hoped. The PTs are starting to really work on strengthening and balance as well as his walking gait. He walks much different than before surgery, so he's basically learning to walk all over again. We've tried him out without his AFOs for the last 2 days at school and he seems to be doing well, but exhausted by the end of the day. His Neurosurgeon, Dr. Park, wants Andrew to ditch those braces as soon as possible, and now that we are a month post-op, I think its' time to start him weaning off them. He still has therapy 4 days a week (ughh, exhausting with all this running these kids around). It's been quite frustrating with his outpatient PT since somehow his sessions keep getting cancelled! I think we may move him to a different clinic... but the therapy when he does get it, is very good. He is making a lot of progress and now just started running again! He seems much quicker and is also having an easier time going alternating feet upstairs too. Now he just has to train his brain to lead with his left foot. It's been such a habit for so long, it's difficult to break.  So you'll all have to watch the new videos we posted on YouTube with Andrew running from house to house on Halloween! It was such a relief not to have the wagon to get him from house to house this year! The boys went to every house on the block and Andrew did a great job keeping up with the group. Only a few times did they have to wait up for him! The videos are a bit dark, but be sure to watch them in HD so they are clearer. We're planning on getting some more post-op videos together soon. I'd like to do a monthly video now. He's just been progressing so quickly that we can't keep up!
 

We had a great Halloween this year. The boys both dressed up as zombies and Sean & I actually got dressed up to go out on Saturday night to a costume party. We've never gone out on Halloween. We dressed up as Snooki & Pauly D from the Jersey Shore. We had a great time and got lots of compliments on our costumes. We laughed all night long.
Speaking of Jersey Shore... we sneaked a trip down to New Jersey to surprise my cousin Wendy for her 40th birthday for the night and had an amazing dinner at Moonstruck in Asbury Park, NJ. Great food, great service and lots of fun. If you ever get to Asbury Park, you've got to go eat there! We had to keep it a secret from the kids so they wouldn't be mad that they couldn't come. They love going to Jersey to visit family. It was a bit exhausting to drive the 6+ hours there, dinner & drinks all night long and then 6+ hour drive back all in a matter of 24 hours... but it was worth it.
Sean & Mel outside Moonstruck - Asbury Park, NJ

The weather is starting to turn crisp and we finally gave in and turned on the heat! We've had a little bit of snow that didn't stick, but it's still snow! We've officially retired the bikes & pool toys for the summer and have to get the sleds and shovels warmed up for winter. Take down the Halloween decorations, only to put the Christmas ones up. We have our family photo session on Sunday on location and pray that it's not too cold. It could make for a miserable day.
Andrew's Zombie costume

Matthew's rockstar zombie constume

Matthew's rockstar zombie constume

Matthew, their cousin Killyan & Andrew

Cousin Kamden, Matthew & Andrew with the spooky skeleton

Monday, October 4, 2010

We're home...

As you've probably heard already, we got home safely.
On Friday (1 day post-op) Andrew went to Physical Therapy at the hospital. He woke up this morning and was not in hardly any pain. He slept well too aside from some leg twitching throughout the night. We arrived a PT and unfortunately Dr. Dobbs was unable to meet us at PT and we couldn't wait until later to see him since we had to catch a flight home. His session went well and the therapist was able to get Andrew to put weight on his legs and got some stretching in. It was hard to get him to try to take steps. He told us after that it was "complicated" to get his feet working right and said they felt funny. (strange to him but normal for us). It's going to take some time to get him stretched out and on a better walking pattern. 7 years of toe walking is a hard habit to break.
So our flight home was pretty uneventful. We had to again take a train to the airport and two different flights to get home then a 2 1/2 hour drive & a stop to pick up Matthew at his grandparents house. Needless to say, we were exhausted!
The next morning we all went off to Matthew's soccer game (which they won, yay) and then came home to do some more exercises with Andrew. We came up with the idea to have him push around our large suitcase that has 4 swivel wheels on it. It was great to see him take a few steps on his own. We stretched him gradually all day and had him wearing his tension leg braces that force his foot and heel cord to stretch at a resting position. He didn't complain at all.
By Sunday he was ready to play with his friends, so we had lots of company and it really motivated him to get moving instead of sitting on the couch moping all day. By the end of the day he was able to take some unassisted steps.
So today was his first day back to school and he was really scared to go. He asked lots of questions about how he was going to get around school and what happens at gym and recess. So we went to school to drop him off (I was prepared to stay for the day) and he was determined to walk across the entire school all the way to his classroom (the furthest from the entrance to school) He did great! Little shuffling steps, but he did it holding my hand the whole way. His face lit up when just about every single child he passed in the hall welcomed him back to school. We knew right away that he would get more than enough help to make it comfortably through the day. His teacher assured us that he would be fine. We met with his PT to give her the scoop on what to expect on his first few PT sessions. Of course today was also "gym day". So the gym teacher adapted his gym time accordingly and Andrew was able to play on the scooter chairs in class.
So by the end of the day when I went to go pick Andrew up, he was actually walking completely independent! Slow, but steady and the best part was that his heels were DOWN and his feet were FLAT! Now we just have to work on strengthening those heel cords, gastocs and hamstrings and at the same time keep them stretched out. Then we'll work on his form.
We're are excited but it makes me sad to hear Andrew say "I wish I never had this surgery now". But when I ask him why he says that and he says "Because now I can't play with my friends today"... But I've assured him that it is just a matter of time he will be back to running down to his friends' houses and he'll be happy he had the surgery.
Take a look at some of the videos we've uploaded to www.youtube.com/thefavilles
We uploaded some before and after videos and will continue to track his progress. Subscribe to our YouTube channel so you won't miss any videos. You'll get an email any time we add a video.
Since I was off work today and didn't have to spend the day at Andrew's school, I started "Project Organize"!! I took 4 hours today to sort and dump papers, file bills & receipts, put away 2 school years of the boys work for keepsakes and feel good about how clean my kitchen and their bedrooms are becoming. Day 2 tomorrow and hoping I can take another chunk out of the mess and clutter around here.

(below is the first video in the series in the progress of Andrew from Pre-Op to recovery. Visit our YouTube channel to see more videos... www.youtube.com/thefavilles)

Thursday, September 30, 2010

End to a busy day...

We were updating via iPhone earlier today and the rest of the day way pretty busy, so we are just getting around to updating now. No news is good news! Andrew's surgery went great today. They took him in to surgery around 11am. Surgery itself was only about a half hour long. The surgeon called us to let us know Andrew was in recovery and doing well. The did the lengthening on just the left side and only on his heel cord. There's a small incision just above his ankle.
This little warrior didn't even cry once! Not at ALL! I have no idea how he does all this and has absolutely no fear of doctors or hospitals. It only took him a few minutes in recovery to be sent to his room. He did great coming out of anesthesia without any problems. He did develop a rash a few hours afterward but it passed quickly. We think it could have been something they gave him or simply a heat rash. Besides that, it was pretty smooth. Andrew was able to keep everything down and enjoyed his popsicle and juice. So well, they allowed us to come back to the hotel for the night since it's attached to the hospital. Andrew was feeling well and wanted to go for a little tour of St. Louis. (in the wheelchair of course). So we walked a few blocks to see the shops and fountains. Andrew enjoyed getting outdoors today in the beautiful weather. He was still not back to normal but was willing to eat so we decided to keep it simple and get him some mac & cheese. Something that will be easy on the stomach. And if you know how Andrew eats, you'll know he's not 100% when he doesn't even finish it and has the ability to sit through our dinner without asking for anything to eat and not wanting ice cream or cookies. We headed back to the room and he's zonked out as I type this. He does not like his meds so tomorrow when we go back to meet with the surgeon and Physical Therapist, we'll have to be sure they can give us some more flavoring or we're going to have a hard time getting him to take it. Otherwise, everything went wonderful and the staff at St. Louis Children's hospital was, as always, amazing! Truly worth the trip just for the friendly staff and community. Even throughout the city, everyone is so pleasant & helpful. I've never been anywhere where the people were so friendly!
So we can take a little breath now and we'll head back to the hospital in the morning to see how Andrew's doing and for some more assessments and physical therapy & so the surgeon can check on him.
Pictures to come soon through Shutterfly. They'll be added to the previous "St. Louis..." album.
Thank you all again for the wonderful support & good wishes for Andrew. It means a lot to us to have such wonderful caring, loving family and friends!

Click here to view these pictures larger

Andrew - Surgery St. Louis

Click here to view these pictures larger

We're waiting....

We arrived at the surgical waiting room at 8:30 this morning. We met with the surgeons and doctors who'll be taking care of Andrew today. He also met with the child care team who explained the surgery and had pics of the OR for Andrew to see and know what to expect. They gave him a little something to calm his nerves which has made him a little loopy. He seemed fine and not afraid at all. They just took him in to the OR at 11am. Now we're just waiting to hear him come put of surgery to recovery. He's a brave boy! We'll let you know when he's out of recovery which they say could be as little as an hour up to a few hours depending on what they encounter during the surgery and whether they need to do more than expected.
We're hanging in there ok. Trying to remind ourselves that this should be a piece of cake compared to his last surgery.

Wednesday, September 29, 2010

Surgery tomorrow...

Sean & Andrew at St. Louis Children's Hospital Center for Cerebral Palsy Spasticity


Just to let everyone know that surgery is scheduled for 8:30 am (9:30 Eastern time). Andrew is just sad he can't have breakfast tomorrow. We had a nice dinner at Applebees to end a busy day. After all his appointments today Andrew wanted to go to the St. Louis zoo, so we decided to have a little fun while we were here and bring him to the zoo. His favorite part was the penguins. The weather is beautiful out here... warm & in the high 70s.
Dr. Dobbs said surgery is only an hour long. As long as surgery goes smooth and he comes out of anesthesia well, we should be able to leave the hospital that day. Thankfully since he is not having the multiple surgeries they initially though he was having, we shouldn't have to stay in the hospital overnight. The doctor said that most children do very well and have minimal side effects or pain, so there is no reason he would have to be admitted. Another bit of good news! Now we hope that everything goes smooth tomorrow.

Andrew hanging out on the rooftop gardens at the hospital (Take a virtual tour - click here)


Sean & I taken by Andrew on the rooftop garden at St. Louis Children's

Rooftop garden at St. Louis Children's

Rooftop garden at St. Louis Children's

St. Louis Zoo

St. Louis Zoo

The penguins at St. Louis Zoo, Andrew's Favorite

The penguins at St. Louis Zoo, Andrew's Favorite

Andrew on the carousel - St. Louis Zoo

Sean letting Andrew's wheelchair take off down the ramp - St. Louis Zoo

Snakes at the St. Louis Zoo
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Everything went well today...

Andrew's appointment with the Physical Therapy team went really well. They did his evaluation and measurements and we're excited to hear that his range of motion is the same on his right leg & ankle as it was in October 2007. His left leg has actually improved a bit which was a surprise since it is the leg that he will be having the surgery on. But it has not improved enough to dismiss the lengthening surgery.
We met with Dr. Park later in the day and he was optimistic that Andrew will recover quite well from the lengthening surgery. He was pleased with his progress but stressed that an increase in physical therapy and stretching is best for his progress. He also agrees with Dr. Dobbs in having just the PERCS on the left leg and to leave the right alone at this time. They both feel that doing just the left leg will trigger his right side to correct itself. Which is all great news. His hamstrings are tight but not to the point of needing them lengthened at this time. His heel cords are the ones causing all of the walking problems that he has. Dr. Park is confident that after this surgery and with continued PT and stretching that Andrew will be able to walk more normal. He will have no more falling, no more crouching and less foot dragging. He should also be able to walk with a better heel strike which will improve his posture and balance. He's pushing Andrew to do more physical activities like soccer, karate, basketball etc. The more exercise the better. He is stressing that more running is the best exercise for him. He was pleased to hear that Andrew ran the half mile fun run this summer and is very proud of him. He was positive that the Selective Dorsal Rhizotomy surgery he had almost 4 years ago had a huge impact on his Cerebral Palsy. So much that he said that Andrew would never have been able to run in that race at all if it weren't for the SDR. He really wants Andrew to throw away his leg braces after he's healed from surgery. We see that the braces are having an impact on his running and walking abilities even though it is helping to stretch him out. We all HATE the braces so we're all excited to hear this.
We're so thankful to have such a great neurosurgeon working for Andrew and always keeping him in his best interest.